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Prof. Dr. Bernice Simone Elger

Department of Clinical Research
Profiles & Affiliations

Projects & Collaborations

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Towards EQUIty in MEDtech - Reducing Gender and Sex Bias in Active Implantable Medical Devices [EQUIMED]

Research Project  | 2 Project Members

EQUIMED investigates sex and gender inequalities in implantable medical devices. Through interviews and multidisciplinary research, it aims to improve equity in medical technology.

Despite technological advancements, medical devices do not function the same way for men and women, with women experiencing more adverse effects. Implantable devices are particularly affected by sex and gender biases. EQUIMED studies this issue in Switzerland, the UK, and Germany by analyzing data, interviewing experts and patients, and evaluating ethical policies. Its goal is to make these devices safer and more effective for everyone.

EQUIMED seeks to understand and reduce these inequalities by exploring why women and gender minorities face higher risks and what factors contribute to these disparities. Its research will support the development of fairer solutions for implantable medical devices, such as pacemakers and neural implants, while also setting new ethical standards in medical technology.

By addressing biases in research, design, and regulation, EQUIMED aims to improve the safety of medical devices for all. The project will provide evidence-based recommendations to help policymakers, manufacturers, and healthcare professionals create more inclusive technologies. Collaboration between regulators, industry, and healthcare providers is essential to ensuring safer and fairer medical devices for everyone.

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Agequake in prisons: Improving the knowledge and awareness on aging in prisons

Research Project  | 3 Project Members

Der demografische Wandel hin zu einer alternden Gesellschaft macht vor den Mauern nicht Halt. Ältere inhaftierte Personen sind eine stetig wachsende, aber gleichzeitig vergessene Bevölkerungsgruppe. Als typischen Gefangenen stellt man sich häufig eine junge, körperlich starke, männliche Person vor. In der Schweiz ist jedoch bereits jede fünfte inhaftierte Person im Alter über 50. Diese Entwicklung stellt Gefängnisse vor eine neue Herausforderung: Wer ist diese Altersgruppe? Welche Bedürfnisse haben sie? Und wie sollen wir diese versorgen? Mit diesem Öffentlichkeitsprojekt soll das Thema des «Altern im Gefängnis» vor die Mauern gebracht werden, um diesem aktuellen und kontroversen Thema Raum zu geben.

Das Forschungsteam um Prof. Dr. Bernice Elger hat über die letzten zehn Jahre hinweg einen einzigartigen Datensatz und neue Erkenntnisse zur alternden Bevölkerungsgruppe der Schweizer Justizanstalten geschaffen. Während zwei vom SNF-finanzierten Grossprojekten wurden die psychischen, physischen und sozialen Bedürfnissen der älteren inhaftierten Bevölkerung untersucht. Diese äusserst wichtigen Analysen wurden bereits in internationalen Wissenschaftszeitschriften publiziert. Nun soll dieses Wissen auch der Allgemeinbevölkerung zugänglich gemacht werden.

Mit schriftlichen, visuellen und auditiven Medien vermitteln wir unser Expertenwissen an Schüler, Studenten, Gefängnispersonal, medizinisches Personal sowie der allgemeinen Öffentlichkeit. Eine Fotowanderausstellung wird zum Zentrum für verschiedene Workshops und Podiumsdiskussionen. Weiterhin wird mit einer Sonderausgabe des Magazins zum Straf- und Massnahmenvollzug vom Bundesamt für Justizvollzug (#prison-info) ein Wissenshandbuch zum «Altern im Gefängnis» geschaffen. Dies wird online und auf Papier für Angestellte des Schweizer Gefängnissystems, Besucher der Fotoausstellung sowie der interessierten Öffentlichkeit zugänglich sein. Schliesslich wird ein übersichtlicher Flyer mit den wichtigsten Informationen in Kürze, spezifisch für die älteren inhaftierten Personen, geschaffen.

Dieses Öffentlichkeitsprojekt bringt ein stilles, aber hoch aktuelles Thema der breiten Öffentlichkeit zum Anfassen nahe. Mit unserem immensen Wissensfundus und dem kritischen Austausch mit Experten sowie Laien möchten wird die Auseinandersetzung mit diesem vernachlässigten Thema fördern. Dies, um Wissen über diejenigen zu verbreiten, die unter uns leben, aber unsichtbar sind.


Die Fotowanderausstellung zu ‘Altern im Gefängnis’

29.03. - 05.04. 2024 - Schloss Lenzburg

15.04. - 30.04. 2024 - Konferenz Schweizer Gefängnisärzte

13.05. - 23.05. 2024 - Zürcher Gemeinschaftszentren

23.05. - 13.06. 2024 - Haute école de santé Genève

16.10. - 06.11. 2024 - FHNW Muttenz


Der Fotograf

Der Basler Fotograf Peter Schulthess entdeckte zufällig vor über 20 Jahren fotografisch die Welt hinter Gittern, mit ihrer eigenen Architektur, Abläufen und Eigenheiten. Er begann, sich mit dem Thema Justizvollzug grundlegend auseinanderzusetzen und schnell entwickelte sich daraus eine Eigendynamik: mehrere Bildbände, Fotoausstellungen und Fachbücher waren die Folgen. Seine Bilder erscheinen regelmässig z.B. im #prison-info des Bundesamtes für Justiz.

#prison-info

www.prison.photography

www.prisonphotoproject.pt

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INtegrating loneliness mitigation measures in pandemic management plans: an interdisCiplinary in-depth expLoration of psychologically and ethically sUitable interventions to DecreasE social isolation [INCLUDE]

Research Project  | 8 Project Members

Project description

It is widely acknowledged that the Covid-19 pandemic, and successive Coronavirus-related restriction measures, have caused serious disruption to ordinary lives and a deterioration in public mental health. Apart from illness and death, a distinctive mark of the pandemic has been disrupted social interactions, increasing social isolation and loneliness. Mental health consequences varied widely and were significantly dependent on an individual's unique social context. While the National COVID-19 Science Task Force (NCS-TF) proposed already in June 2020 that mitigation measures for main stress factors should be included among pandemic management plans (PMPs), in-depth research on concrete measures and on the ethical balancing between prevention of mental health problems versus prevention of virus spread remains scarce.

Given the high diversity of how people cope with social isolation, there has recently been a growing recognition that the concept of loneliness captures best the difference between being alone versus lonely, and that loneliness and its mitigation (during and beyond pandemics) need to be at the center of much needed further research. Already before the pandemic, globally, between one fifth and a third of the world suffered from loneliness. In 2005, 26% of the Swiss population reported feeling lonely and by 2017 the figure had increased to 38% (above the global average of 33%). It is well established that loneliness is a serious health risk that affects both psychological and physical health.

There is a vital need to include loneliness prevention and alleviation interventions (LPAIs) in PMPs. To do so requires not only thorough knowledge about feasible and available measures and their usefulness, but also a well-argued and well communicated psychologically and ethically sound balancing between measures, especially those measures that may alleviate isolation, but at the same time increase virus spreading. Taking loneliness into account in future PMPs will reduce the harmful psychological, physical and behavioral effects of social isolation measures, increase individual and social welfare, and enable more transparent and just strategies to reduce the burden associated with pandemics.

Objectives and study parts

We will use a mixed methods approach to fill the existing research gap. The aim is to provide an in-depth exploration into the experiences of people affected by loneliness in order to identify types and justifications of loneliness prevention and alleviation interventions that can inform PMPs.


UZH Öffentlichkeitsanlass 2023 - Vortrag Prof. Dr. Bernice Elger



Link zu weiteren Informationen

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The use of knowledge and data in an AI enabled world. Considerations for the future health sector regarding ethics, digital divide implications and prosperity

Research Project  | 2 Project Members

This research project is a first step towards a larger goal to understand in more depth what is required structurally to form the right policy incentives under UN frameworks to unlock value in the health sector with respect to sharing of data, algorithms and capabilities for the broader good, particularly focusing on high-impact Artificial Intelligence (AI) use-cases. One proposition to achieve this is using the UN Guiding Principles on Business on Human Rights as basis for policy recommendations, and further strengthening the moral foundation by investigating biomedical ethics related questions. Also, current ongoing discussions with regards to Sustainable Development Goals (SDGs) in the pharmaceutical sector are indicating that corporations are particularly challenged with Social- & Governance-Scoring related questions, and investors expressed worries that their portfolio companies might will face headwinds in sustaining their legal and social license to operate in the long-run. In this regard, for instance, one point of criticism from policy makers is the concentration of extraordinary AI capabilities among a few large and/or specialized corporations, besides other ethical issues that impact societies at large. We believe that business models, AI ethics, financing and policy related questions for the health sector are interwoven and require a holistic approach to converge to a common agreement between various stakeholders, and that international UN frameworks and institutions could provide a platform to discuss the right incentive mechanisms with regards to digital governance, achieving the ultimate goal for better common goods outcomes.

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Implementing 3Rs in Switzerland: an interdisciplinary in-depth exploration of barriers and facilitators [Implement-3R]

Research Project  | 10 Project Members

The 3R principles and regulation of animal research The use of animals in biomedical and other research presents an ethical dilemma: we do not want to lose scientific benefits, nor do we want to cause laboratory animals to suffer". In Switzerland, the majority of animals (64%) is used in fundamental research and a minority (ca. 20%) are used for developing and testing pharmaceutical and chemical products. The 3R-strategies ("replace, reduce, refine") are "today widely accepted by scientists as a moral obligation to treat animals humanely and if possible to use alternative methods in experiments". The national and international regulatory framework concerning the use of animals for research stipulates adherence to the 3R principles[3-5]. In addition, Swiss law requires researchers to demonstrate a favourable harm-benefit ratio to justify animal experiments[6, 7]. There is an ongoing discussion in the fields of ethics, law and science concerning the interpretation of the 3Rs and harm-benefit analysis. Eminent ethicists have recently proposed a more elaborated, argued way how to balance social benefit and animal welfare in this context.